PHOTOS: Walk-a-thon benefits twins battling Facioscapulohumeral Muscular Dystrophy

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In 2010 the Bonamassa twins were diagnosed with Facioscapulohumeral Muscular Dystrophy. Now in eighth grade the once athletic young women struggle with mobility. Like many in the MDA fight, the Bonamassa family is discovering that not all expenses are covered by insurance.   Berlin Community School teachers,  school administration and the Bonamassas organized the Walk-a-thon to raise funds and awareness for families struggling to meet the costs associated with muscular dystrophy.  More than 500 people participated in the walk.  Michelle Bonamassa spoke at the event with her husband Sal, older daughter Natalie, and Jessica and Julia by her side and gave an emotional thanks to the outpouring of support given to her family.

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“Life is so unpredictable, and you just never know what road blocks are going to get in your way. My heart breaks everyday as a mother to see this horrible disease attack my children, while I can only stand back and watch helpless, unable to control anything that is happening. Getting this walk together was just one small thing I can do. I can only hope that this money raised will help fund research to find a treatment or even a cure for my girls and everyone else dealing with muscular dystrophy. I truly know that being in this school and community is no coincidence., we were placed here 10 years ago for a reason. Every single teacher & staff member @ BCS has been really wonderful to our family. The love & support is really overwhelming.”

This walk at Berlin Community School was a precursor for the larger MDA event that takes place in King of Prussia on March 29th.  The funds donated Sunday go directly to MDA, but you can also donate directly to Jessica and Julia using their GoFundMe page.

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